Published: Mon, July 17, 2017
Health | By Jay Jacobs

USA doctor meets with specialists treating Charlie Gard

USA doctor meets with specialists treating Charlie Gard

A BRITISH consultant has dismissed a USA doctor's offer to save Charlie Gard with experimental treatment, saying he is hoping for a "magic potion".

The Great Ormond Street Hospital told the court their position remains unchanged, that every medical treatment option had already been explored, and that any experimental treatment would be unjustified.

Charlie's parents Chris Gard and Connie Yates are now making their case in the High Court seeking a ruling allowing their 11-month-old son to travel to NY for experimental treatment.

Michio Hirano, a professor of neurology at the Columbia University Medical Centre in NY, is in the United Kingdom to examine 11-month-old Charlie.

Professor Michio Hirano, 55, from the Columbia University Medical Centre, is flying to London tomorrow to examine the desperately ill baby at the request of a judge.

Great Ormond Street Hospital has said clinical staff are "on hand to facilitate the visit" and Dr Hirano has been given an honorary contract, giving him full access to the baby's medical records.

Hirano was invited to make the visit after offering an experimental gene therapy he believes has a 10% chance of improving muscle strength and bringing a "small but significant" improvement to Charlie's brain function.

A judge overseeing the latest stage of litigation has agreed that Ms Yates can be present when experts meet to discuss Charlie's condition.

They say life support treatment should stop.

But judges in several courts - most recently the European Court of Human Rights - told his parents that taking Charlie overseas was not in his best interests.

Rare-disease specialists at Bambino Gesu' are working with other worldwide experts to map out an experimental treatment protocol for Charlie, hospital chief Mariella Enoc said.

The European Court of Human Rights also decided not to intervene in the case.

Hirano, who has been providing evidence to the High Court via video link, suggested that now, there is clinical data that were not available in April, and he thought the therapy was "worth trying".

Alasdair Seton-Marsden, who represents Charlie Gard's family to the press, has said baby Charlie has become "a prisoner of the state".

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